Circadian Rhythm Sleep Disorders (CRSDs or CSDs) are neurological disorders in which the sleep-wake cycle is out of sync with the day-night cycle. These include in particular Delayed Sleep Phase Disorder and Non-24-Hour Sleep-Wake Disorder. Also included are Advanced Sleep Phase Disorder, Irregular Sleep Wake Disorder, Shift Work Disorder, and Jet Lag Disorder, which are defined here.
Delayed Sleep Phase Disorder (DSPD), also called Delayed Sleep Phase Syndrome (DSPS), is characterized by an inability to fall asleep until very late at night, with the resulting need to sleep late in the morning or into the afternoon.
Non-24-Hour Sleep-Wake Disorder (Non-24), also called Free-Running Disorder (FRD), is a condition in which a person's day length is significantly longer than 24 hours, so that sleep times get later each day, cycling around the clock in a matter of days or weeks.
We are asking our members and followers to give our brochure, and/or our Q&A booklets, to their sleep doctor and their general doctor on their next visits. It is vital to all of us suffering from circadian disorders that more doctors and their support staff understand these disorders and how disruptive they can be. The more doctors who know about us, the more patients we can reach, inform, and support. And the larger our membership, the more credible our voice on behalf of all people with circadian sleep disorders.
You can print out the brochure on US letter paper (8½x11) or on A4 paper (non--US). Booklets can be printed for DSPS or for Non-24 (the same file can be printed on either US or A4 paper). Alternatively you can email us at to request a printed copy of any or all these documents (please specify which). Be sure to include your name and full postal address. We will send these at no charge to you.
A fourth article in a series on DSPS was just published on salary.com, featuring an interview with CSD-N member Julie Peggar on how she has managed her impressive career as an ethnographer. This article is titled Why Working 9 to 5 Might Be Bad for Your Health. The third article in the series was Should Some Employees Be Allowed to Start Work Late?, about member Tom Lemmon on how he has managed his career as a software engineer. The second was Change Your Career, Not Your Sleep Habits, about member Maya Kochav, a freelance writer. In the first article, How Your Bedtime Is Affecting Your Job Performance, our president, Peter Mansbach, was interviewed. All the articles in this series are by reporter Nancy Ancowitz. Thanks to board member Susan Plawsky for suggesting this topic to the reporter and arranging the interviews.
Thanks to everyone who emailed the National Sleep Foundation (NSF). They have already fixed the most serious misinformation on Non-24 in sighted people, and have indicated that they will add a section on DSPD. Further changes in the Non-24 pages are under discussion. The emails from our members and others were instrumental in bringing about these changes. Together we have a voice!
Some background: Recently the National Sleep Foundation (NSF) created a new set of web pages on non-24 with some serious and harmful misinformation. Thanks to our members' emails to them, NSF has changed the most objectionable statement to our satisfaction and added a link to our website. However, they have not yet made the other modifications we asked for. And they still have not listed DSPD at all.
So we urged our members again to write them. And they did. The NSF has now said that they plan to add DSPD. No timetable yet, we expect it will take some time.
At our urging, NORD, the National Organization of Rare Diseases (www.rarediseases.org) has added Non-24-Hour Sleep-Wake Disorder to their list of rare diseases. Special thanks to James Fadden, our vice president, who wrote up an excellent description of the disorder, supported by references to the research literature; and to Dr Katherine Sharkey, on our medical advisory board, who edited it and supported our application. The writeup can be viewed at www.rarediseases.org/rare-disease-information/rare-diseases/byID/1275/viewAbstract. You need to sign up at NORD [free] to see the full text.
Some walkers in the National Sleep Walk
Walk organizer Julie Flygare and CSD-N president Peter Mansbach after the walk
Assembled group before the walk
Circadian Sleep Disorders Network is an affiliate sponsor of the third annual U.S. National Sleep Walk, to "celebrate sleep health & sleep disorder awareness in our nation's capital". We got a nice paragraph on their affiliates page, our name on the back of their T-shirts, and a mention in their press release.
The walk was held March 3 at the Lincoln Memorial in Washington, DC. It was scheduled an hour later than previous years, in part due to our lobbying. We even won a Sleep Spirit Award for our CSD-N sign! (see photo above right)
This is scheduled in conjunction with the (U.S.) National Sleep Foundation's National Sleep Awareness Week®, March 3-10.
Circadian Sleep Disorders Network was recently accepted as the newest member of NSART, the National Sleep Awareness RoundTable. This is part of NSF, the (U.S.) National Sleep Foundation, operating under a grant from CDC, the (U.S. government) Centers for Disease Control.
Our president, Peter Mansbach, presented some information about CSD-N at the meeting on Feb 28. The text of the talk, together with a brief introduction to NSART, can be viewed
Our president, Peter Mansbach, presented some thoughts at the NIH (U.S. National Institutes of Health) Sleep Disorders Research Advisory Board meeting on Feb 25. These included a renewed push to get circadian sleep disorders listed on the NIH web site, and two major concerns about research into these disorders. The text of the talk, together with a brief summary of other topics discussed, appears
We've put together a short Fact Sheet as a quick way of introducing circadian sleep disorders to people who don't know about them. It's one side of one sheet of paper, so it's easy to print out. It's shorter and less dense than our brochure or our Q&A booklets, so it's a quick and easy read, just the basics.
We posted a video re-enactment of last year's presentation to the National Institutes of Health by Peter Mansbach, our president, at
We hope soon to do some shorter, punchier videos more suited to spreading awareness of our disorders. This one was to introduce CSD-N and our mission to NIH, and also allowed us to develop skills in this new (to us) medium.
Peter also attended the Narcolepsy Network conference in October. The purpose was twofold: to learn from them how they spread awareness of their disorder so successfully, and to raise awareness of circadian disorders. Further details are posted here. Our brochures and Q&A documents were exhibited near the registration desk at the conference (photo at left).
Circadian Sleep Disorders Network has formally affiliated with the Niteowl Email List. What does this mean? CSD-N grew out of this list - the founders of CSD-N "met" on this list, many of our members participate, and we share the same goals. We are also available to assist the list administrator if needed. Nothing about the list's operation will change.
Our brochure is geared to the general public, to introduce DSPS and Non-24 to people experiencing symptoms of these disorders, and to their families.
Please distribute it to anyone who may be interested.
Print on lightly colored paper for some color, if you like. We used ivory.
|Brochure - web display||
Print on US letter size paper, PDF
Print on A4 size paper, PDF
The web display version shows the brochure panels in easy-to-read order. The print versions are meant to be printed out on both sides of a sheet of paper, then folded in thirds, creating a brochure. (In the print version, the panels will appear out of order on-screen.)
We have posted documents describing DSPS and Non-24, in an easy to read Question-and-Answer format. These are designed to give to family members, friends, employers, and school personnel, to help them understand these disorders. Feel free to print and distribute these. There are two different (but similar) versions:
|DSPS Q&A - web||printer||booklet*|
|Non-24 Q&A - web||printer||booklet*|
The web formats display nicely in your browser.
The printer versions are formatted by your browser for printing a multi-page document.
The booklet forms are pre-formatted PDF files that you can print on two sides of a single sheet of paper, which then folds in half into a booklet.
* When printing the booklet, be sure to flip on the short edge (select this option if you have a double-sided printer).
We also have a one page Fact Sheet that introduces DSPS and Non-24 to people who don't know about them. It's a quick and easy read, just the basics.
We are offering merchandise (mugs, T-shirts, tote bags, bumper stickers, and a messenger bag) with our name and logo through CafePress,
www.cafepress.com/circadiansleepdisordersnetwork. (Note: if you just search CafePress you will find this merchandise, but at a higher price!)
Circadian Sleep Disorders Network is a Coalition Partner of Start School Later. We understand only too well the difficulties many teens have with early school start time, and we support the move to start school later.
We're still getting started!
This web site is intended to provide generic information about CSDs, and
is not intended to replace discussions with a healthcare provider.
You should not use the information on this website for diagnosing or treating a medical or health condition.
All decisions regarding patient care should be made with your healthcare provider.
Like us on Facebook
Follow us on LinkedIn
Visit us on Facebook
Visit us on LinkedIn