Circadian Sleep Disorders Network - Advocating for people with misaligned body clocks
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Some Highlights
About the Survey
Circadian Rhythm Disorders
Diagnosis
Tiredness
Other Sleep Disorders
Other Disorders
Treatments
Take the Survey!

Some Preliminary Survey Results

Some Highlights

About the Survey

Circadian Sleep Disorders Network, in partnership with Invitae (formerly AltaVoice, formerly PatientCrossroads), is sponsoring a registry and survey at www.CircadianSleepDisorders.org/registry. Please take the survey, if you have a circadian rhythm sleep disorder and have not already done so. Your answers are de-identified, we cannot connect your name and email to your survey responses. For more information, see www.CircadianSleepDisorders.org/registry/registry.php.

The following preliminary results come from responses of the 578 people who have completed the survey as of May 11, 2018. We now have even more respondents. It is preliminary also because we have not eliminated inconsistent entries. Also, we have not yet looked at correlations, for example to determine if some experiences are more common among non-24 respondents than DSPD respondents, or whether patients whose eyes are especially light-sensitive respond differently to various treatments. We need a bigger sample to do correlations, so we hope to get a lot more circadian rhythm sleep disorder people to take the survey.

Researchers: Below is just a small sample of the survey. The full list of 123 questions can be viewed at www.CircadianSleepDisorders.org/registry/survey_questions.php. (This is not the survey itself. To take the survey you must go here.)

Circadian Rhythm Disorders

(Note: The chart below is old, based on only the first 200 respondents)
bar chart: which circadian disorder

Of the 578 respondents to date: Note: Some people have responded with multiple diagnoses.

Diagnosis

Tiredness

Other Sleep Disorders

(Note: The chart below is old, based on only the first 200 respondents)
bar chart: other sleep disorders

Other Disorders

(Note: The chart below is old, based on only the first 200 respondents)
bar chart: other conditions

Treatments

(Note: The chart below is old, based on only the first 200 respondents)
bar chart: treatments tried

Images courtesy of Invitae.



© 2019 Circadian Sleep Disorders Network
Last modified Jun 26, 2019
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