These also appear on Page 1 of the survey

INSTRUCTIONS & DEFINITIONS

Note that the signup questions that you get first are not the survey! Part of the signup process with Invitae involves answering two pages of demographic questions like age, gender, race, etc. This is not our survey. After you've finished signing up you will be taken to our survey, called "Circadian Rhythm Sleep Disorders", which asks about your circadian disorders, sleep habits, treatment, and other disorders. Our survey has multiple pages. The actual number is dependent on how you answer some key questions. Please be sure to complete the entire survey. Otherwise, your responses will not be used in analysis.

If you're wondering whether you have in fact completed the survey, you can see by clicking on "Profile" at the top of the survey home page. Your profile shows which surveys you have completed. We are interested in the Circadian Rhythm Sleep Disorders survey.

INSTRUCTIONS

• NOTE that Circadian Sleep Disorders Network does NOT have access to your identifiable answers. We can see "Person A" responses and "Person B" responses, but we don't know who Person A or Person B are. Even if you allow Invitae to tell us your email address, we then know only that you registered to take the survey, not what your responses were. Your email address stays separate from any survey responses.
• You do not have to complete the survey in one sitting; it takes half an hour or more. If you stop part way through, your next login will take you to the page where you left off. Your previous answers will have been saved. (Note: only pages that you clicked "Next" on are saved, since that's when the responses get sent to Invitae.)
• The only questions you MUST answer, for technical reasons, are the few marked with a red asterisk. But we do urge you complete the entire survey to provide the most value to researchers.
• If you want to change an answer on a previous page, please DO NOT use your browser's button to go back. Changes can be made after completion (see the last bullet point below).
• At the end of the survey there is space for any comments you may wish to add.
• If you are filling out this survey on behalf of another patient (such as your child), "you" refers to that patient.
• Once you have completed a survey, you can review your own responses by clicking on "Profile" at the top, then clicking on the survey name (e.g. "Circadian Rhythm Sleep Disorders").
• Once you have completed a survey, you can see how many others chose the various responses to the questions by clicking on "View Data" at the top of the page.
• Once you have completed a survey, you may, now or in the future, change or update your responses. Log in, click on Profile > Circadian Rhythm Sleep Disorders > Retake this survey. Any responses that you do not change will be kept.
• Some pages in the survey are conditional. For example, you only see the page of questions on light therapy if you earlier said that you have used light therapy. Etc.

DEFINITIONS:

Delayed Sleep Phase Disorder (DSPD). Sleep occurs later than desired, but usually at around the same time every day (within a few hours). To get enough sleep, one needs to sleep late into the morning or afternoon. Waking up earlier is difficult. The body is resistant to shifting the schedule earlier with the usual sleep hygiene methods. (Other names include Delayed Sleep Phase Syndrome (DSPS), Circadian Rhythm Sleep Disorder – Delayed Phase Type, and similar.)

Non-24-Hour Sleep-Wake Disorder (Non-24). Sleep occurs later and later each day, progressing all the way around the clock. In some persons living on a 24 hour schedule, Non-24 may present as periods of insomnia recurring at regular intervals over weeks or months. (Other names include Free Running Disorder, Hypernychthemeral Syndrome, Circadian Rhythm Sleep Disorder – Free Running Type, and similar.)

Advanced Sleep Phase Disorder (ASPD). Sleep occurs earlier than desired, and the sleeper has difficulty staying up in the evening and wakes up very early. (Other names include Advanced Sleep Phase Syndrome (ASPS), Circadian Rhythm Sleep Disorder – Advanced Phase Type, and similar.)

Irregular Sleep-Wake Disorder (ISWD). Sleep is not regular, and generally there are multiple sleep periods each day. (Other names include Circadian Rhythm Sleep Disorder – Irregular Type, and similar.)

Circadian Rhythm Sleep Disorder (CRSD). Any of the above four disorders. (Also Circadian Rhythm Disorder (CRD))

We are not surveying shift work disorder, which likely has different underlying causes.

Questions? Problems? Contact us at .