Circadian Sleep Disorders Network - Advocating for people with misaligned body clocks
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My “Marriage” to Mr. DSPS

by Annechien Foeth

Confession: I have never written a blog before, this is all quite new to me. But my sleepy sister asked me, and hey, I don't back down from a challenge.

Whilst on the subject of confessing: I am married! Great, right? Wrong, I am a child bride, the day I was born was the day I got married. I got married to Mr. DSPS and I can't ever divorce him. We've spoken our vows to each other almost 36 years ago, and "till death do us part" is serious business in this twisted relationship of ours.

Mr. DSPS tells me what to do; he tells me when I can go to bed, when I can get out, when I can eat my dinner/ breakfast/ lunch, when I can go to a party. He also keeps me from being active with my children, from having a career, from studying and learning. Mr. DSPS is an abusive husband, and I can never break free of him. I've tried to delude him with pills, with alcohol, with exercise, with food restrictions, and you know what, he is a sly bastard. Within days he knows what is going on and (like the Empire) he strikes back. He controls me, makes me tell lies to the world, makes me feel like I am a second rate type of person, makes me feel like I can achieve nothing.

Now, I am somewhat of a successful person that lives with Mr DSPS: I am married married to a wonderful man, that supports me (and is also somewhat of a nightowl); I have a job; not the job I wanted, nor the job I have the brains for, but a job nonetheless. I am raising two children; sure it takes a village and the whole village (a.k.a. my mom and a nanny) are constantly in my house, but I am raising them. Raising them both into extraordinary persons, with a huge imagination, believing that fairies still exist and miracles do happen. I am somewhat alive during the day, though the world sees my version of an active person.

But I am so tired. So deeply tired. It is encased in my bones. It is, despite what I want, what defines me. I am Annechien, 36 years old, and if I yawn, it is not because I think your story is boring. It is because I am the embodiment of tired.

Normal sleepers nag to me about being tired and I want to smash their heads into a wall. They want me to understand what they are going through without willing to understand what I am going through. Let me tell you what: unless you have also stood in front of a window, debating whether to jump or not, you do not know what it is to be tired, normal sleeping person!

Now, this sounds all so very depressing but there is an upside to my abusive marriage: I have met so many wonderful people! People who are also married to Mr. DSPS, people that married his evil twin Mr. Non24, people with Narcolepsy; nightowls!

And I love my nightowl community, I love that we howl at the moon every night, I love (comparing) our combat stories, we lick our wounds together. We salve our souls being around each other. We laugh till we cry or go into a cataplexy attack, one look and we know what ails us and what binds us. Amongst ourselves, we are free of our marriages. Amongst you, I am me! So, Mr. DSPS kicks me down a lot. I have you! I have you all, I am you all, you are all me! And while I may go down kicking and screaming, I know it has been one hell of a ride and, in a weird way, a great one. Cause I have had the privilege to know you!

© 2016 Annechien Foeth
Last modified Aug 9, 2016
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